Diet and spoons

This week I lost the same 200g that I gained last week and lost the week before. I’m not complaining because I’ve had to step back from the diet plan I was following due to the ‘Beast from the East’ disrupting food deliveries.*

That’s not what I’m going to focus on today. I’m feeling a lot more thoughtful about how being a Spoonie ( a person with a chronic health problem, see here for an explanation of Spoon Theory) affects attempts to eat healthily.

You’d think that having a chronic health problem would make it more important that I stick to some kind of healthy eating plan and you’d be right. But you’d also be wrong because for us Spoonies everything has to be balanced. Any spoons I spend on meal planning are spoons I won’t have later should I need to pay some bills. Any spoons I spend on preparing a nutritious meal are spoons I can’t spend on cleaning up afterwards.

Often the Spoonie life means half assing a bunch of things because if you spend the spoons to do any of them properly it’ll be the only thing you do that day. All those partially solved problems become a cascade of further problems. So instead of doing the laundry OR cleaning the kitchen OR working on my novel I end up putting some stuff in the tumble dryer, wiping down one kitchen surface and fixing exactly one scene. So the next day I have laundry that’s not put away, a hob and a sink that still need cleaned and one slightly less shitty scene that mainly succeeds in making the rest of the novel looking bad.

Not that any of this means I’m giving up on my diet. I’ve got a doctor to prove wrong.

 

*For people outside the UK the ‘Beast from the East’ was a polar vortex weather system that plunged the whole country into arctic temperatures for a week. It wasn’t just that the temperatures were very low it’s that the temperatures were that low pretty much everywhere so the road clearing services were stretched very thin. It also didn’t help that so much snow fell that our usual tactic of gritting the roads so that the snow melts faster and vehicles can maintain grip was rendered useless.

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My annual Spoonie scald

When you’re a Spoonie ( person with a chronic life limiting illness but see the link for more details) people tend to assume that your problems all come directly from your illness without ever seeing how the secondary problems proliferate.

You’re in pain and the pain means you can’t sleep and the lack of sleep causes its own problems. The constant mental work of managing your very limited mental resources end up costing more of those resources. Your coping mechanisms have coping mechanisms.

At least once a year I burn or scald myself because my brain is on automatic pilot and I’m trying to do something that’s necessary for me to function.This time I stuck my whole right hand into my coffee filter cup while it was full of near boiling water. Then tipped the whole thing, grounds and all, all over the kitchen. Then I forgot I was wearing rings and had to strip them off after my fingers had started swelling.

I got lucky. Most of the swelling went down with a combination of cold running water as long as I could stand it and then sitting with an ice pack on the remaining swelling. But it’s annoying. And I never got my coffee. And I have a enough swelling on my right ring finger that it’s put a serious dent in my typing speed.

Now there’s no obvious line between Fibromyalgia and a burn. But I’m pretty sure that this burn happened because one of the consequences of Fibromyalgia is having to go about my day with a considerable portion of my brain either distracted by pain or working to manage my symptoms or my spoons.

Most of the Spoonies I know pick up multiple injuries a year as a result of their primary condition. Falls because their balance is wrecked, scrapes because they’re not fully aware of their surroundings, self inflicted cuts caused by trying to prep food while half asleep. And the worse bit usually isn’t the physical injury. It’s feeling like an idiot. Here I am, a full grown adult, and I stuck my hand in scalding hot water out of my own incompetance.

Woo Hoo! Rejection.

So the “getting used to rejection project” which started back in May has finally come to fruition. The agent got back to me. He wanted my novel for a particular publisher that, as of two weeks ago, decided they were only looking for straight crime series novels and romance. He’s working full time for the publisher and can’t spare the time to represent me.

I have to say I am surprised by my own reaction. I’m really not particularly upset about it. I’m a little upset about having to write more fucking query letters. I’m a little upset about having to tell people who were rooting for me. I’m really not looking forward to telling my Mother because she will surely launch into another conspiracy theory about how he was only after my manuscript to steal my novel.

In a bizarre turn I’m slightly pissed off to have got the bad news so quickly. Could he not have waited for me to finish tidying the house? Now I have to use my precious spoons to chase up agents and write query letters rather than clean the house.

Well I say I’m not particularly upset but I went out this afternoon and bought (amongst other things) loads of ice cream and crisps and then came back and had to lie down for two hours but that’s probably unrelated.

Spoonie blues.

The other day I was regaling you will tails of my epic laundry fail. It turned out that failure was not done with me that day.

You see I had more chores to do. I had to leave the house and get on a bus and go to actual shops to buy things because I was out of deodorant and we were getting low on chocolate and cheese and that’s an emergency in my house. The chocolate and cheese is an emergency, the deodorant not so much. However it turned out that I had made a horrible miscalculation.

I knew when I was cleaning the kitchen and doing the laundry that I had to save some spoons for going out (if you’re confused by the spoon reference please see this explanation of spoon theory). I thought I was being careful: I cut corners on the cleaning, I didn’t go looking for additional laundry, and I had a sit down and a decaff before leaving the house. It was all for naught because by the time I got off the bus on the way home I was moving in slow motion. When I actually got home my body was sending my brain so many error messages that I couldn’t speak properly. In short I was in negative spoons.

Being in negative spoons is no joke. Your body wont co-operate, your brain isn’t working properly and everything either hurts or is numb. And it doesn’t stop there. There’s a hangover from negative spoons. Those additional spoons I used that I didn’t actually have had to come from somewhere. They came from the future. When you’re in a spoon deficit it means that you’ve borrowed spoons from tomorrow and they must be re-payed with interest. But when you’re borrowing the spoons you don’t know how much interest you’ll be paying back or for how long. I could be paying back those spoons for days. And wearing pink while I do it.