So the CBD oil that I’ve been talking about in previous posts here and here is definitely working.
My background levels of pain have greatly reduced and it’s now easier to deal with breakthrough pain. However my right knee has clearly decided to be a horrible bitch about things. It’s swollen and it’s grinding and it won’t reliably bend and it hurts whenever I do foolish things like stand up or sit down or roll over in bed.
And something else has decided to flare up. Something really painful. Something that I really need to see a doctor about but I was too late this morning to get an appointment and I have stuff to do tomorrow that can’t be moved and if I leave it till Friday to see the doctor then I will have reached my own personal defcon 10 of pain.
That’s not 10 out of 10 on the pain scale. That level of pain is just screaming until it stops. Defcon 10 is out of my mind with pain, distraction and frustration. It’s a result of having to just put up with a level and type and location of pain that no-one should have to put up with. Defcon 10 is dangerous because it makes me want to knife 40 people at random. Hopefully the CBD oil will help with this kind of pain.
If anyone is interested I will post links to the kind of vape pen, cartridges and oil I’m using.
Keeping you all up to date on the things that I’m doing.
I’m continuing to experiment with vaping CBD oil for pain management. I’ve had two problems. The disposable vape pen I was using started to leak and I’ve had a major pain flare up.
Fortunately CBDlife* dealt with my complaint in a speedy fashion. I was going to buy a reusable vape pen anyway and they offered me a free oil cartridge as a replacement for the leaking pen and delivered the order the next day.
The pain flare up is a semi-regular thing where I get a muscle spasm in my upper back or neck that spreads to my arm (usually the left one). It’s horrifically painful and requires several days of painkillers, exercise and not using my arm for anything other than the special exercises. The CBD oil does seem to be helping with the pain so that’s something.
I’ve been working on one of the sequels to the novel I’ve been querying. I’ve now finished draft 1.5 and I’m going back and writing the extra scenes that I’ve realised I need. I reckon I have maybe 20,000 words of extra scenes plus one entirely new character that needs to be added.
My friend,Vanessa Robertson, has persuaded me to enter the pitch perfect competition at Bloody Scotland. I’ve been working on a 100 word pitch for the ‘finished’** novel. There’s a part of me that thinks it’s a bad idea because I can’t stick to a single genre and Bloody Scotland is for crime writing. She pointed out that I have nothing to lose and that my novel does have crime in it.
Querying has stalled because most agents are on holiday. However I do have my sights on two agents that I intend to query in the autumn. Both are as a result of personal recommendations.
I also recently got some idea of how steep the mountain ahead of me is. Vanessa was recently offered representation by an agent and she told me what the numbers are like. In a single year her agent will receive thousands but take on only a handful of new clients.
Can someone remind me why I ever thought writing was a good idea?
*If you use that link to buy stuff I will get a percentage back as store credit.
**I’ve decided to start calling the novel ‘finished’ because it can’t really be finished until it’s ready to be published. It’s currently as finished as I can get it without help from someone who knows more about editing than me.
One of the problems with chronic pain is that it’s a lot harder to treat than acute pain. With acute pain you can just knock it back with strong painkillers and then wean yourself off the painkillers. Acute pain also has a limited duration so there’s the option of putting up with it till it goes away.
Chronic pain isn’t going anywhere and over time the painkillers tend to become less effective. My pain is variable so I deal with it by only medicating it when it gets particularly bad and ignoring it the rest of the time. This is not ideal.
For the last week I’ve been experimenting with CBD. That’s cannabidiol which is a non-psychoactive component of marijuana. That means it doesn’t make you high. There’s some evidence that it can be used to treat anxiety, inflammation and pain. Sadly it’s the THC in cannabis that works really well against pain but that’s the stuff that makes you high and you can’t buy that legally in the UK.
I’ve been vaping CBD oil as it’s the fastest way to get it into the system. I’ve been using it to deal with those times when the pain suddenly gets bad. Oral painkillers can take up to 40 minutes to take effect so something quicker would be handy. I’ve also been using it when I’m feeling anxious as anxiety can make Fibromyalgia worse.
It seems to be working. It’s been helpful when joint pain hits while I’m out and about. It’s too early to be sure but I’ll keep you updated.
For now I’m using a disposable vape pen in blackcurrant menthol flavour. I was dubious about that as a flavour combination but it’s surprisingly nice. I will probably move to a refillable one now that I think it’s worth the money. If anyone else wants to try the same supplier I’m using I have a referral link. If you use it and you buy stuff I get a discount. Here’s the link – https://cbdlifeuk.com/?raf=ref1943134.
There have been some proper trials done on CBD that showed a positive effect. However only a couple have been large scale double blind trials. Most of the studies have been of quite poor quality. So I would suggest that if you are going to try it you take it slow, don’t spend loads of money on something that might not work for you.
A few days ago I wrote about my feelings of guilt at not working hard enough towards my writing goals. I wrote about how I’d been playing a lot of World of Tanks rather than writing. I said it was fun but it wasn’t taking me anywhere. Turns out I was wrong. It was taking me in the direction of pain.
One of the problems caused by Fibromyalgia is muscle spasms. Sometimes they come on without an obvious cause but they can be triggered by any repetitive activity or maintaining a the same position too long. Apparently when I play World of Tanks I grip the controller too tightly with my right hand (I use the right stick to aim and the right trigger to fire).
As a result my right arm is now, to use a highly technical medical term, fucked. I can’t feel my fingers, my hand is tingling, my forearm feels like it’s on fire and my bicep feels like I’ve been arm wrestling Thor. My typing speed is a quarter what it usually is and I need help to brush my hair and put a bra on.
It’s so bad I’ve had to break out the painkillers. Let me put that statement into perspective. I have a chronic pain condition. That means I’m always in pain. There’s no point medicating the pain all the time because I have to rely on synthetic opioid painkillers and the more you use them the less effective they are. My aim in using them isn’t to kill the pain but to reduce it to a level that isn’t a constant distraction. Thus I don’t bother with pain medication at all unless the pain is consistently worse than standing on a Lego brick.
To summarize: I’m too sore to write, too high to do chores and I can’t distract myself with video games because that would only make the problem worse. I would really like it if my life could stop sucking for a bit.
I’ve discovered a cool new diet specially for those of us suffering from chronic pain disorders. It’s the “I hurt too much to get food” diet. I’m going to lose so much weight.
All the food is in the kitchen. I am currently not in the kitchen. I’ve already taken the maximum dose of painkillers and the pain is still bad enough to make me feel nauseous. Hobbling through there so I can stand for a while on a leg that thinks it’s got an axe sticking out of it so I can prepare food that my stomach thinks I can’t keep down doesn’t feel like it’s worth the effort.
There’s probably a creative solution to this but the problem with taking the maximum dose of painkillers is that now I’m too full of synthetic opioids to think clearly. Also my face is numb but my fucking knee still hurts. How is that fair?
Bloody knee. I’ve had enough of its bullshit. I didn’t fight off two eating disorders just to fall back into one of them because my knee is a drama queen.
I wrote a blog post and I looked at the work in progress and added 174 words and then… Oh God, my fucking back.
It’s one of those pains that’s more than just a pain. It’s a sick feeling in the pit of the stomach. It’s being grumpy at my husband for very little reason. It’s having flashbacks to being in labour. It’s a tingling in the fingers and the toes. It’s impossible to concentrate. The pain has hijacked my brain.
It won’t last forever. I’ll either get over it or get used to it. Still sucks ass though.
… as previously stated is “Always look on the bright side. If you can’t find the bright side polish the dark side.”
I’ll give you an example. I have a Chronic Pain Disorder (Fibromyalgia with a side order of Chronic Fatigue Syndrome). That means that I am in pain pretty much all the time. Painkillers don’t work well on Chronic Pain Disorders. NSAIDs (Non-Steroidal Anti-Inflammatory) can help but I can’t take them because they affect my asthma. This sort of diagnosis is one of those times when the medical profession is basically saying “LOL. Sucks to be you.”
You would think that there is no possible bright side to this. And you would be right. It’s debilitating, it’s painful, it’s irritating, it’s depressing, and like all invisible disabilities it carries a massive stigma. There is no bright side but you can polish the dark side:
- I am totally not afraid of you. There is nothing you can do to me to cause me more pain than my body does all by itself.
- I am secure in the knowledge that I am a total badass. I have a list of things I’ve been through that are more painful than childbirth. Do you? Didn’t think so.
- Oh you’re going to kill me? Woop. Go for it. Saves me the trouble. Did I mention depression?
- But I will go down fighting. Fighting will hurt but everything fucking hurts and you don’t survive 39 years of depression without a stubborn streak you could lay tarmac on and call a road.
Now I speak to all my brothers and sisters out there in a similar boat. When everything hurts and nothing will change it, when life feels meaningless and worthless and pointlessly dark, when everyone else is bored of how much your life sucks – look life in the eye and say, “Bring it on, Bitch. You and me. Right here. Right now. I may be going down but you’re coming with me.”