It’s been a while since I wrote anything about living with a chronic pain condition so it’s time for another update. What fun!
The thing about a variable condition like mine is that while the pain never truly goes away it can sometimes lull you into a false sense of security by being less horrible for a while. And then it comes back full force and you remember why your life sucks.
I’ve been having shoulder trouble for a few weeks because I had dared to enjoy myself by playing video games. I cut right back on that and stretched more and just put up with the pain which is how pain management actually works. It doesn’t solve the problem it just helps you to live with it. Which usually means living less.
That’s not the pain I’m writing about now. Though now I think about them my shoulders do feel like I’m wearing lead epaulettes and I wish they’d stop.
Today I woke up and rolled over in bed and I really wished I hadn’t because it feels like some psychopath filled my pelvis and lower spine with broken glass. Holy crap it hurt. It’s still hurting. It’s hurting a bit less because I’ve taken paracetamol (acetaminophen for American readers) and vaped some CBD (cannabidiol, and yes it is legal in the uk).
What I want to say is that if you know someone with chronic pain and you see them smiling and moving around and apparently fine that doesn’t mean that they’re not actively in pain right now. It just means that compared to how much pain they have been in it’s no biggie for them.
If you also have chronic pain and you’re wondering about the CBD here’s the details. It’s legal in the UK. In the US it’s more complicated. In theory it’s legal at the federal level as long as there’s no THC in it but local laws vary.
I get mine from CBD Life, which is a UK based company though they do ship to other countries. I can recommend their vape liquid and their customer service but I have no first hand experience of their other products. That is an affiliate link. If you buy stuff from them I’ll get money off my next order, because I do buy and use their stuff and I want to buy more.
And if you want to buy me a coffee, because coffee does help with pain management, you can do it through Ko-fi.
So the CBD oil that I’ve been talking about in previous posts here and here is definitely working.
My background levels of pain have greatly reduced and it’s now easier to deal with breakthrough pain. However my right knee has clearly decided to be a horrible bitch about things. It’s swollen and it’s grinding and it won’t reliably bend and it hurts whenever I do foolish things like stand up or sit down or roll over in bed.
And something else has decided to flare up. Something really painful. Something that I really need to see a doctor about but I was too late this morning to get an appointment and I have stuff to do tomorrow that can’t be moved and if I leave it till Friday to see the doctor then I will have reached my own personal defcon 10 of pain.
That’s not 10 out of 10 on the pain scale. That level of pain is just screaming until it stops. Defcon 10 is out of my mind with pain, distraction and frustration. It’s a result of having to just put up with a level and type and location of pain that no-one should have to put up with. Defcon 10 is dangerous because it makes me want to knife 40 people at random. Hopefully the CBD oil will help with this kind of pain.
If anyone is interested I will post links to the kind of vape pen, cartridges and oil I’m using.
One of the problems with chronic pain is that it’s a lot harder to treat than acute pain. With acute pain you can just knock it back with strong painkillers and then wean yourself off the painkillers. Acute pain also has a limited duration so there’s the option of putting up with it till it goes away.
Chronic pain isn’t going anywhere and over time the painkillers tend to become less effective. My pain is variable so I deal with it by only medicating it when it gets particularly bad and ignoring it the rest of the time. This is not ideal.
For the last week I’ve been experimenting with CBD. That’s cannabidiol which is a non-psychoactive component of marijuana. That means it doesn’t make you high. There’s some evidence that it can be used to treat anxiety, inflammation and pain. Sadly it’s the THC in cannabis that works really well against pain but that’s the stuff that makes you high and you can’t buy that legally in the UK.
I’ve been vaping CBD oil as it’s the fastest way to get it into the system. I’ve been using it to deal with those times when the pain suddenly gets bad. Oral painkillers can take up to 40 minutes to take effect so something quicker would be handy. I’ve also been using it when I’m feeling anxious as anxiety can make Fibromyalgia worse.
It seems to be working. It’s been helpful when joint pain hits while I’m out and about. It’s too early to be sure but I’ll keep you updated.
For now I’m using a disposable vape pen in blackcurrant menthol flavour. I was dubious about that as a flavour combination but it’s surprisingly nice. I will probably move to a refillable one now that I think it’s worth the money. If anyone else wants to try the same supplier I’m using I have a referral link. If you use it and you buy stuff I get a discount. Here’s the link – https://cbdlifeuk.com/?raf=ref1943134.
There have been some proper trials done on CBD that showed a positive effect. However only a couple have been large scale double blind trials. Most of the studies have been of quite poor quality. So I would suggest that if you are going to try it you take it slow, don’t spend loads of money on something that might not work for you.