I can deal with the pain it’s the frustration that really hurts.

So the CBD oil that I’ve been talking about in previous posts here and here is definitely working.

My background levels of pain have greatly reduced and it’s now easier to deal with breakthrough pain. However my right knee has clearly decided to be a horrible bitch about things. It’s swollen and it’s grinding and it won’t reliably bend and it hurts whenever I do foolish things like stand up or sit down or roll over in bed.

And something else has decided to flare up. Something really painful. Something that I really need to see a doctor about but I was too late this morning to get an appointment and I have stuff to do tomorrow that can’t be moved and if I leave it till Friday to see the doctor then I will have reached my own personal defcon 10 of pain.

That’s not 10 out of 10 on the pain scale. That level of pain is just screaming until it stops. Defcon 10 is out of my mind with pain, distraction and frustration. It’s a result of having to just put up with a level and type and location of pain that no-one should have to put up with. Defcon 10 is dangerous because it makes me want to knife 40 people at random. Hopefully the CBD oil will help with this kind of pain.

If anyone is interested I will post links to the kind of vape pen, cartridges and oil I’m using.

Updates: pain, writing, pitching, querying

Keeping you all up to date on the things that I’m doing.

Pain

I’m continuing to experiment with vaping CBD oil for pain management. I’ve had two problems. The disposable vape pen I was using started to leak and I’ve had a major pain flare up.

Fortunately CBDlife* dealt with my complaint in a speedy fashion. I was going to buy a reusable vape pen anyway and they offered me a free oil cartridge as a replacement for the leaking pen and delivered the order the next day.

The pain flare up is a semi-regular thing where I get a muscle spasm in my upper back or neck that spreads to my arm (usually the left one). It’s horrifically painful and requires several days of painkillers, exercise and not using my arm for anything other than the special exercises. The CBD oil does seem to be helping with the pain so that’s something.

Writing

I’ve been working on one of the sequels to the novel I’ve been querying. I’ve now finished draft 1.5 and I’m going back and writing the extra scenes that I’ve realised I need. I reckon I have maybe 20,000 words of extra scenes plus one entirely new character that needs to be added.

Pitching

My friend,Vanessa Robertson, has persuaded me to enter the pitch perfect competition at Bloody Scotland. I’ve been working on a 100 word pitch for the ‘finished’** novel. There’s a part of me that thinks it’s a bad idea because I can’t stick to a single genre and Bloody Scotland is for crime writing. She pointed out that I have nothing to lose and that my novel does have crime in it.

Querying

Querying has stalled because most agents are on holiday. However I do have my sights on two agents that I intend to query in the autumn. Both are as a result of personal recommendations.

I also recently got some idea of how steep the mountain ahead of me is. Vanessa was recently offered representation by an agent and she told me what the numbers are like. In a single year her agent will receive thousands but take on only a handful of new clients.

Can someone remind me why I ever thought writing was a good idea?

 

*If you use that link to buy stuff I will get a percentage back as store credit. 

**I’ve decided to start calling the novel ‘finished’ because it can’t really be finished until it’s ready to be published. It’s currently as finished as I can get it without help from someone who knows more about editing than me.

My country wants me dead. Again.

At the last election I was faced with the realisation that the electorate of the United Kingdom either actively wants me dead or at least doesn’t care if I die. It was a sobering realisation.

This time it is, if anything, worse. Because now it’s not just the United Kingdom. Many of my fellow Scots want me dead. Why?

Seriously, Scottish Conservative voters, why do you want me and people like me dead? You’ve voted for a party that has cut disability benefits, attacked the NHS, cut Social Care spending and refused to condemn the forced institutionalisation of disabled people. People are dying. People have died. And if, as seems likely, the Tories cling on to power then more people will die.

If you voted Conservative in this election then you voted in favour of turfing out law abiding EU citizens, you voted in favour of the rape clause, you voted in favour of taking mobility cars from disabled people, cutting benefits to the mentally ill and to people with learning difficulties. You voted in favour of benefit sanctions that drive vulnerable people to food banks where they can hang out with nurses and police officers. You voted against the NHS. You voted in favour of fox hunting and selling ivory and cosying up to Donald Fucking Trump.

If you voted Conservative then why? What was it that you thought you were voting for?

Of course if it’s Scottish Conservative MPs that return the Conservative party to power against the will of the English electorate I am going to laugh for about a week. Particularly since the EVEL legislation, pushed through by the Conservatives in the wake of the independence referendum, means that they wont be able to vote on a lot of bills.

Perspective shift

Last year I was diagnosed with lymphoedema. At the time it just seemed like yet another thing wrong with me. I almost asked the Doctor why he bothered telling me since it’s just another thing that I can’t fix. I did some research and found that it was either genetic or caused by being fat and while I was suspicious that it might be genetic it seemed more likely that it was caused by being fat. So not only did I have a new thing wrong with me that I couldn’t fix but it was probably my fault.

Today I found out that my research was wrong. My lymphoedema would appear to be caused by Lipoedema. It makes sense of a lot of things. It explains the leg pains I’ve had for years, the way my legs were huge but my feet didn’t have any fat on them, and especially the time I lost more than 8 stone (119 lbs or 54 kg to be exact) and saw little change in my legs – my body was 8 dress sizes smaller than my legs.

Now I was only able to lose 8 stone because I did get really fat. But not until after I tried anorexia for a while. I had fat legs when I was anorexic too. I don’t mean imaginary fat legs. I mean the last day I was actively anorexic I was 13 years old and I was wearing a t-shirt sized for a 11-year-old girl and size 10 women’s trousers which only just fitted over my knees and thighs but fell off without a belt.

When I stopped restricting my food intake my disordered eating snapped back in the other direction and I took up binge eating. Which didn’t help my legs or my already fragile self esteem. Every time I tried to change my eating habits I found that I couldn’t keep it up. The anorexia had left me unable to see any positive change in the mirror and the lipoedema meant that I wasn’t getting much positive feedback from my clothes.

I used to describe my teenaged self as fat and depressed. But maybe I was just an average girl with undiagnosed lipoedema and ADHD. I spent my childhood and teen years feeling stupid and worthless and deformed and it’s cast a long shadow over the rest of my life. What would I have been like if we’d known what was wrong?

The thought of it makes me feel queasy. I can’t think properly because of the unfamiliar sound of some part of my mind repeating “It wasn’t your fault. None of it was your fault.” It feels weird. I tend to assume that everything is my fault.

Please don’t kill me.

The UK is facing an unexpected election in June.  I have a message for everyone eligible to vote in it – I’m a human being, my disability doesn’t make me any less human, people like me don’t deserve to die just so that our elected leaders can pursue a dream of austerity that most reputable economists regard as purest bunkum.

You might be wondering what on earth I’m going on about. It’s not like anyone is talking about loading disabled people on to cattle trucks. Yet. So here’s some further reading for you:

If you vote Conservative you’re voting for people who don’t care about child poverty, the working poor, or disabled people. You’re voting for people who can’t even lie consistently. You’re voting for people who claim that they are subsidising an entire nation (Scotland) while refusing to subsidise a spare room to store the equipment needed by a disabled child.

A vote for the Conservatives says that you’re just fine with selling off the NHS. It says that you think filling in an 8 page form about sexual assault is a reasonable burden to place on a woman just trying to get tax credits for a third child. It’s saying that you think the 50,000 disabled people who have already lost their motability vehicles are better off indoors.

Whatever else you think you’re doing when you put your X in the box marked Conservative And Unionist Party you’re also telling me and people like me to just fuck off and die quietly.

New fail conditions.

My life has always sucked but for more than half of it I was sure that the suck was all my fault. I didn’t know what I wanted and I knew I wasn’t trying very hard at anything. I thought that if I could just work out what to go for and really go after it then all my problems would be solved.

You can see why I thought that, can’t you? It’s all over pop culture. The idea that if you want something enough and you fight hard enough for it then you can get it. It’s bullshit. Dangerous bullshit.

Underachieving because you’re not really trying does hurt but at least it feels like it’s under your control. Trying your very hardest and still failing hurts far worse. It hurts so much that it makes you try harder than your hardest. It makes you push yourself beyond the point of failure, beyond the point where your body ceases to work properly, beyond the point where you are, strictly speaking, sane.

If you get to that point and still fail it feels like death. It feels like you’ve died and gone to hell. You must be dead because how can something hurt that much without killing you?

I hit that particular wall back in 2012. My repeated failure to do anything with my completed novel is nowhere near as bad as that. But it is giving me flashbacks.

Living down to my expectations

There is this tension in my mind between my pessimism and the knowledge that I am depressed and I have terrible self esteem and thus things probably aren’t as bad as I think they are. I try to believe people when they say nice things, when they tell me that I am not worthless, that my work has value, that there’s hope. It goes against my instincts but my instincts are tainted by the chemical imbalance that make me hate myself.

But there’s two underlying problems with the assumption that my depression makes me misjudge the world around me. The first is the strong evidence that depressed people make more accurate estimations and predictions than the average person. Perhaps because depressed people are unburdened by optimism. The second is that experience tells me that things are usually at least as bad as I think they are.

I’ve written before about this feeling of being a constant disappointment to everyone around me. Even I sometimes think that it can’t be true. That I must be exaggerating or misreading things. I said that I thought my parents-in-law were disappointed in me and I could hear it in their voices. Well they’re visiting this week and my husband tells me that his mother has been subtly hinting that he should leave me.

I can’t really argue with that. He probably should leave me. In theory at least. I can’t see it working out so well in practice but that’s probably the pessimism talking.

It’s no surprise to me that she’s thinking that. It’s barely even news that she’s said it out loud to my husband. The snapping of that tension in my mind, though, that stings. That horrible reminder that yet again I was right. That knowledge that my biggest mistake isn’t my pessimism. It’s that I’m not pessimistic enough.

Still I’m putting a brave face on it. At least this means I can stop trying to please her.  I don’t have to dress nicely or wear makeup around her. I can stop translating for her and her son. I can stop inquiring after her many friends and family. I can stop commiserating with the problems that come with owning three houses (all of them larger than any house I’ve lived in) and two cars (both new) and taking four holidays a year (and that’s only counting the holidays abroad).

I can go back to being my own slobby, untidy, bad tempered, worthless self.