Health update

I have decided that the regular diet updates were as boring as hell. I don’t want to ditch them entirely but I want to change the focus. I think my overall health is more important than my weight. And I’m sick of this blog getting followed by diet and weight-loss blogs.

Some of you will be thinking ‘I bet that means she’s put on weight again’ but no. Actually I’ve lost half a kilo which is just over a pound so my total weight loss is now just over 15kg (33 pounds). I don’t know how. I’ve not been sticking to the strict eating plan and I’ve hardly been wearing my compression tights so I don’t think it’s all fluid. All I can say is that my body continues to be a mystery.

No news on the replacement compression hosiery. I hope they’re going to arrive soon but it’s possible that they’ve been doubly delayed by the weather. Either that or the manufacturer has lost the order again. Not much going on with exercise because of the fibromyalgia flare up that caused the horrible back spasms. My back pain might be easing off but it’s too early to be sure. It could just be lulling me into a false sense of security.

In mental health news I’m doing an excellent job of seeming ok but I’m having serious executive function problems so I know that something is not right. Or maybe it’s just the same thing that’s never been right and I’m just less tolerant of it than usual.

In creative news I’ve got some excellent ideas for the sequels to the completed novel that I was querying and to the novel I’m finishing off. Sequels are great in theory but if I don’t get those novels published then they’re just more wasted effort.

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Diet and spoons

This week I lost the same 200g that I gained last week and lost the week before. I’m not complaining because I’ve had to step back from the diet plan I was following due to the ‘Beast from the East’ disrupting food deliveries.*

That’s not what I’m going to focus on today. I’m feeling a lot more thoughtful about how being a Spoonie ( a person with a chronic health problem, see here for an explanation of Spoon Theory) affects attempts to eat healthily.

You’d think that having a chronic health problem would make it more important that I stick to some kind of healthy eating plan and you’d be right. But you’d also be wrong because for us Spoonies everything has to be balanced. Any spoons I spend on meal planning are spoons I won’t have later should I need to pay some bills. Any spoons I spend on preparing a nutritious meal are spoons I can’t spend on cleaning up afterwards.

Often the Spoonie life means half assing a bunch of things because if you spend the spoons to do any of them properly it’ll be the only thing you do that day. All those partially solved problems become a cascade of further problems. So instead of doing the laundry OR cleaning the kitchen OR working on my novel I end up putting some stuff in the tumble dryer, wiping down one kitchen surface and fixing exactly one scene. So the next day I have laundry that’s not put away, a hob and a sink that still need cleaned and one slightly less shitty scene that mainly succeeds in making the rest of the novel looking bad.

Not that any of this means I’m giving up on my diet. I’ve got a doctor to prove wrong.

 

*For people outside the UK the ‘Beast from the East’ was a polar vortex weather system that plunged the whole country into arctic temperatures for a week. It wasn’t just that the temperatures were very low it’s that the temperatures were that low pretty much everywhere so the road clearing services were stretched very thin. It also didn’t help that so much snow fell that our usual tactic of gritting the roads so that the snow melts faster and vehicles can maintain grip was rendered useless.

Another Bloody Diet Post

I have gained 200g. That’s the same less than statistically insignificant 200g that I lost last week. This week I’m menstruating so it could easily be that.

I am thoroughly pissed off with this diet. It’s partly because I’m not happy with my attitude to food right now and partly because the “Beast from the East” is making it impossible to properly plan my shopping.

I’m disabled so I rely on food deliveries to get the bulk of my groceries. I get a few things locally but my condition is variable so I can’t rely on being able to get out to the shops. So I can get a bit intense when Sainsbury decide to cancel deliveries with no notice or warning. Not even an email to say “No food for you. Soz,” with a handy ‘reschedule for a day when the weather isn’t trying to kill us all’ link to click on.

My options now are to come off the diet and eat all the store cupboard stuff that doesn’t really fit it until I can get a delivery or to go on the ‘I can’t eat anything because Sainsbury is run by bastards’ diet. Or find out how many of the local takeaway delivery drivers are nuts enough to be driving in this weather.

Wish me luck.

2018 Diet Update 4

Before I begin my update I have a message for the various diet and weight loss blogs that keep liking these posts and following this blog. Please stop. This blog is not for you. I regard the entire weight loss industry as predatory. Fat people are not necessarily unhealthy. A person’s size has nothing to do with their value as a human being. 95% of all diets fail and the 5% that succeed only do so by the most meagre definition of success.

I’m not dieting out of any hope that my life will improve or that I will look better or feel better. I’m dieting to prove my doctor wrong. I’m dieting because that’s a thing I have to do if I eventually want to get surgery for my lipoedema. And I don’t have to like it. In fact I hate it. It makes my life so much harder than it needs to be and my life was already pretty fucking hard.

And now we continue with our regularly scheduled update. This week I lost 0.2kg (200g or less than half a pound). That doesn’t seem statistically significant to me. On the other hand it’s not weight gain so I’m not complaining. I had to take a break from my push to 100 squats because my knee objected.

I also had an appointment with the Lymphoedema Nurse to check on my compression tights. She’s suggested replacement compression garments with lower level compression and in a different design. The hope is that they’ll be easier to get on and that I’ll be able to wear them all day.

It’s not the pain that’s the worst it’s the rage

Every day the first thing that I do is to fight with my compression tights. And also my self image and my failing body. I say it’s the first thing but really the first thing I do is to wake up and curse the fact that I am awake and alive and that my life is still like this. Then I muster my limited mental resources for the act of will necessary to get out of bed. Then I fight.

It makes me so fucking angry. Getting up every day to fight a losing battle against the Lipoedema that will eventually turn me into a blob in a wheelchair. Being faced with the reality that I’m not strong enough to get my fucking tights on properly. Knowing that if I can’t master compression garments I won’t even get on the waiting list for the surgery that is the only lasting treatment.

Spending the next hour with weak arms and shaking hands because I’m not getting any better at this. Unable to go anywhere because I can’t get the tights to stay up while I’m walking. Fighting the urge to stab myself. To hack at the useless, lumpy flesh that’s destroying my joints.

And then I spend the rest of the day surrounded by the evidence of the chores that I can’t do because I’m too exhausted from my battle.

I’m trying to get better. I diet even though I hate it and I know it won’t fix the lipoedema. I try to exercise even though that hurts and so far actually seems to be making things worse. I’ve been trying the 100 squat challenge. It took me 3 days to get up to 100 squats but I haven’t managed it since because my right knee hurts too much. The knee pain woke me up this morning.

And the absolute worst is the feeling that it’s all worthless. What’s the point of all this fighting? All it does it makes me angry and tired. I’m giving up the ability to get stuff done now for the chance to be able to do more in the future. But that’s just not going to happen. I don’t get that lucky. This fight is doomed to failure and by fighting I’m making everything worse right now.

 

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2018 Diet Update 3

This week I lost 1.3kg (just over 2 and a half pounds). My total weight loss is now 14.4 kg (31.6 pounds or 2 stone, 3.6 lbs). After experimenting with the positioning of my scales I can be fairly sure this is genuine weight loss but of course much of this week’s total will be down to fluid being forced out of my legs by my compression tights.

Wearing my compression tights continues to be a massive pain in the arse. And everywhere else. Just getting them on uses most of my spoons meaning that I don’t have much left over for chores or writing or working on the thing I’m crocheting for my daughter’s birthday. Or even for reading the book I’m reviewing.

More and more I’m questioning why I’m even on this fucking diet. Let us not forget that calorie restriction is not a treatment for lipoedema, that my value is not inversely proportional to my size, and that no level of weight loss is going to magically render me decorative enough to be societally acceptable. I only got on this damn treadmill because weight loss is a hoop that I have to jump through in order to access the treatments that actually do work.

I am trying to commit to more exercise. Not to lose weight but because I want to be stronger. I’m thinking of taking on a 100 squat 30 day challenge. The idea is to work up to 100 squats a day (any kind of squat counts) and then keep it up for 30 days. I have no idea if this is a good idea but I do think it’s important to have goals.

My problem with body positivity

Strictly speaking I have two problems with body positivity. One is definitely my problem. I think the other is a problem with the movement.

Let’s talk about my problem first. I’d rather own my problems before I go pointing out other people’s. My problem is that I find that I cannot love my body. At best we exist in a state of détente but most of the time we are at war. I hate how it looks. I hate that it’s never comfortable and that I am never comfortable in it. I hate the constant negotiations to get it to do anything. Most of all I hate how limited that anything is.

I want to be strong. I want to exercise. I want to go for long walks. But I can’t lift weights today because I put my compression tights on and apparently that’s me done for the day. As I write this my hands are still shaking just from the effort of getting dressed. How dare they.

And this, of course, creates a secondary problem. Because people keep telling me that I should love my body and I just can’t I feel like I’m letting the side down. Not only am I failing in my patriarchal duty to be decorative I’m failing in my feminist duty to love myself. I’ve failed to be thin and now I’m doing fat wrong.

Now let’s talk about my problem with the body positivity movement, and specifically the ‘healthy at any size’ part of the movement.

Because some of us are not healthy. Some of us are fat because we’re sick. Some of us are fat and sick with no causal link. And then there are people like me. People with lipoedema and similar disorders. People with dysfunctional fat cells that we can’t get rid of. We’re not sick because we’re fat, it’s the fat that’s sick.

I’ve written before about lipoedema. It affects up to 11% of women and post pubescent girls. It’s triggered by hormonal changes. It’s progressive. In many cases, and I am one of them, it is painful and debilitating. Our bodies lay down dysfunctional fat cells that don’t work as an energy store. These cells hang around in the wrong places, trapping fluid, putting pressure on our joints, and causing pain.

Before anyone slides into my comments to tell me that I just need to eat less and move around more my anorexic thirteen-year-old self would like to have a word with you. And she’s carrying a cricket bat. I’d run if I were you. No, faster than that. She’s spent the last 4 years running from people throwing rocks at her head so she’s a lot faster than me. No don’t stop for a rest she’s got plenty of stamina. Try to find some flowers. If she gets a lungful of pollen she might have to stop for an asthma attack.

But back to body positivity and my problem with it. I feel stuck. The lipoedema support groups are full of internalized fatphobia and people whining about how they should be immune from societal fatphobia without ever questioning that it should exist. The body positivity groups erase my experience of being disabled and fat. The insistence that fat women are hot just reinforces the patriarchal assumption that whatever else a woman is she must also be decorative. What if I don’t want to be decorative? What if I want to be a dapper androgynous badass?

Can’t I want to get rid of my dysfunctional fat while at the same time supporting your right to look however you want to look? Can’t we all agree that how people feel about how a person looks has nothing to do with their value as a human being? I just want to be in the world without the feeling that either I have to cut parts of myself off or excavate a me-shaped hole in order to fit in.

2018 Diet Update 2

This week I have either lost 2kg, gained 2 kg or stayed the same depending on exactly where I put the scales and how I stand on them. Clearly I’m going to have to pay much more attention to their exact position on the floor in order to get any idea of the actual trend.

I’m not happy with my eating this week but it was better than the last week. Hopefully next week will be better.

This week has been one long round of the period from hell, struggling with compression tights and attempting to schedule my days so that I get anything done. It’s been two steps forward and three steps back. I still can’t wear my compression tights out anywhere because I can’t get them on properly and that means they just slide down the moment I try to walk anywhere.

Putting the tights on is so exhausting that I’ve only managed one workout this week. I can’t exercise with them on, I have to prioritise wearing them and when I have to take them off I’ve got nothing left for lifting weights. I really hope I get better at this.

2018 Diet Update 1

I have lost 1.3kg ( just over 2 and a half pounds). I’m sure some of that is fluid because I had one day of wearing compression tights before the weigh-in.

I haven’t been paying that much attention to the calories but I have been careful about my food choices, particularly around the proportion of carbohydrates. I’m not happy with my eating yet. I’m not tracking my food carefully enough and I doubt that I’ll be able to keep on losing weight like this.

I’ve talked before about how important preparation is to sticking to a food plan. If you don’t get the shopping right then you’re setting yourself up to fail. This week we did get the shopping right but having the right food in the house is not enough on its own. My head isn’t in quite the right place for sticking to this diet and I’m not sure what’s wrong.

Maybe the problem is that I’ve been so angry for the last few weeks. Women are often socialised to eat our feelings and anger is probably the least acceptable emotion for women to express. Or maybe the problem is that everything just feels futile at the moment.

Another not diet update

Still not back on the diet but I do have a food delivery planned so by the time you read this I should be thoroughly miserable and craving bread. I did weigh myself this week and I’d lost 0.6kg which is just over a pound. It’s bound to be fluid rather than fat though.

Still no sign of the NHS compression garments but I’ve been using the compression leggings that I bought for exercising in. They’re more comfortable than I was expecting. I went for a walk today and it was a lot easier than I was expecting. I think the leggings might be helping to stabilize my knee joints.

I have been strength training but I’m so out of shape that I’m still concentrating on form rather than adding resistance. I think it’s a bad idea to lift heavy with poor form. I’m also trying to build a habit of exercise. If exercising feels natural to me then I’m more likely to do it. I think at this stage that’s more important than pushing myself.