Things are not going my way

Gentle readers I beg your patience while I rant for a bit. The last few days have not gone well and the next few aren’t looking great either.

I’m having a major Fibromyalgia flare up. For the last three days I’ve had a muscle spasm in my back so bad that the pain has gone through excruciating and into exquisite. I’m taking Tramadol, Paracetamol and vaping CBD and I still can’t bend without screaming. There is no comfortable way for me to sit, stand or lie. Part of the spasm is over my left kidney and if I started pissing blood it would be a relief because a kidney infection can be treated, kidney stones pass, even kidney failure can be managed.

Fortunately that’s distracting me from the sudden appearance of a hole in one of my back teeth. I think a filling might have fallen out. Or maybe a bit of the tooth has cracked off. I already had a dental appointment this week so that’s lucky. I’m trying really hard to believe that it’s lucky but it’s hard to think straight over the screaming pain from my back.

I’m still not back on my usual eating plan because of difficulty getting the shopping sorted. Between trouble with deliveries and the problem with my back and my spouse’s anxiety being too bad to do the shopping for me I’m having difficulty sorting out a coherent meal plan.

I’m having trouble getting anything done. I started this weekend with a book I’m wanted to read, a film I wanted to watch on Netflix, a film I’m trying to see in the cinema before it leaves a podcast I’m trying to catch up with and a novel that I’m trying to finish writing. In all I managed 15 pages of the book, neither of the films, 3 episodes of the podcast and about 2,000 re-written words of my novel. That’s pathetic.

And the worst of it is this feeling that my life is slipping away from me. Time is passing and I’m not doing anything with it. Precious seconds of my life are ticking by and I am variously paralyzed by pain, or depression, or indecision, or just lack of basic organisational skills.


If I’m so clever why am I also such an idiot?

Once again I feel like human garbage. This happens often. Today it has happened because I can’t keep all our finances in my head.

That is how it’s done, right? You know how much money comes in. You know what all the bills are. You keep a running total. You pay the bills when you have money and you know how much you have left over. It’s not rocket science. My parents did it. My Mum still does it and she’s on the other side of 70.

But I just can’t make it work. I’ve never been able to keep it all straight in my head and it’s not because I can’t count. I’ve tried to externalise since the other way wasn’t working. I make notes in my diary. I have reminders on my phone calendar. I have a banking app that means that I can check how much money there is at any given moment and move it between the current account and the savings account.

It all seems very organised it but I keep running into the same problem. I want to buy something, or we need to buy something, or my spouse wants to buy something and I keep making the decision based on how much money we have right now. Not on how much money we’re going to have tomorrow, or next week, or on whatever mystery date the next bill needs to be paid.

Yes I do absolutely understand that I am poor and therefore I should never spend any money on anything that gives me joy. But there’s a limit on how many times you can say no in a day There’s also a limit on how long you can live with no joy.

Also I am weak and stupid. I must be stupid. Managing money is so easy. Everybody says so.

Adventures in medicinal hosiery

On Saturday my compression tights finally arrived so I can finally begin to manage my lipoedema. I read the instructions carefully but I didn’t put them on because I was already dressed and frankly, the instructions scared me.

On Sunday I tried them on. It was torture. The fabric is so rough and requires so much force to pull into position that I developed a blister on one knuckle and tore the skin red raw on all the others.

My arms were shaking. The tights weren’t pulled on properly. My legs were on fire and I was filled with an irrational rage caused by a combination of exertion and body dysmorphia. I felt useless and weak. I decided that maybe I was doing something wrong, even though I had read the instructions and done my best to follow them. I was only able to wear the tights for an hour and a half because I couldn’t get them back on after using the toilet.

I asked for advice in one of the Facebook support groups for lipoedema. It turns out you’re supposed to use gloves. There are even special donning gloves made for the job (though most of the members use either disposable latex gloves, rubber washing up gloves, or gardening gloves). How is it that I didn’t know that? If it’s well known that this kind of compression garment will tear your skin off and there are gloves made for the job why didn’t anyone tell me that?

Today I tried to put them on again with mixed success. I used some disposable vinyl gloves that we had in the house and I tried lying down to get them above the knees. As I result I’m typing this while wearing the tights (though they’re still not on properly) but I’m also wearing a lot of plasters because I tore the blister right off and added four new blisters and that was with the gloves on. I think I might have blisters coming up on two of my fingertips. I’ve ordered better gloves and finger tape.

You know how I often complain that my life is unreasonably difficult, that there are always more steps between me and where I want to be than there should be? This is that. This is just another example of the endless multiplication of obstacles between me and any goal.

My tarot deck keeps telling me that I’m trapped by indecision

It’s not wrong.

I have done very little this week except vacillate on the subject of my writing “career” and I’m no closer to a decision than I was last week. I still have a novel that I was querying that I don’t know what to do with. I still have the novel that I was working on that I don’t know if it’s worth finishing. I still have many potential future novels and no idea where I want to go.

Back in 2016 when I pitched my finished novel at XPOnorth it was greeted with a great deal more enthusiasm than I had been expecting. So much enthusiasm that it led me to believe that it was good and that people liked it and that my pitch, and therefore any query letter I wrote based on it, was persuasive.

That was the last time I got any positive feedback from anyone in the publishing industry. Everything since then has been form rejection. If there’s something wrong with my novel then I’ve already blown it’s chances with the best agents to represent it. I have one beta reader telling me that there are massive problems with the first chapter that need to be fixed or I will never sell it and one telling me that it’s okay apart from a couple of spelling mistakes. I’ve got no idea if there are any agents left who’d be interested in it even if I could fix it.

I decided to concentrate on finishing the novel I was working on and then fix the other one later once I’d worked out what I wanted to do. Only now I find that working on this novel seems pointless. It has the same setting as the other one and though I could tweak it slightly and make it the first book set there I’m starting to wonder if the problem is the setting. Or if the problem is me. What if all my books are too wierd? What if they’re just not sellable?

I started thinking that if they are too weird to sell to an agent or a publisher then that’s not necessarily the end. I could self publish. Only I’d be doing it badly because I still can’t afford an editor, or a development editor, or a designer, or cover art.

Maybe the answer is to write stuff that’s less weird. I did try that for NaNoWriMo 2017. I wrote a first draft with nothing magical or supernatural or sci fi. It was ok. I’m not sure the novel has much potential but I wrote it. Maybe I should concentrate on that. It would be much easier for me to break into the industry via crime. But then I would be stuck writing that sort of novel. I’d have built the wrong career.

So what do I do? I’ve got a finished novel that isn’t really finished. A work in progress that might not be worth finishing. A bunch of weird first drafts that I might never be able to interest anyone in. A not weird first draft that I’m not ready to work on and that might be a move in the wrong direction.

Should I just drop the lot of them in a drawer somewhere and try writing something different? Maybe I could write some generic fantasy? Maybe I should give up on selling, give up on re-writing, and just stick them all on the internet for free.

I don’t know what to do. I don’t know if there is a right decision or if they’re all equally wrong. I don’t know what I want to do either.

All I know for sure is that I am spectacularly, incandescently, outrageously angry.

Is depression a choice?

Yes. But not the way you think.

I’m aware that I’m taking a risk starting like this but so be it. If I want to speak to the people who need to hear this I have to start this way. Some of my readers are going to feel attacked but please bear with me.

Depression is one option on a multiple choice test. For some of us this test is an occasional annoyance. For others it gets delivered every goddam day. The test looks like this:

Pick one option only

  • Denial
  • Substance Abuse
  • Suicide
  • Depression

Everyone starts out ticking the Denial box. Nobody wants to be depressed. Depression sucks. So you tick that Denial box. And then you tick it the next day and you keep on ticking it. But it gets harder. The box goes grey and then black and eventually no matter how hard you press down on the paper your mark won’t show up.

For some people that’s enough to go straight to the Depression box but some people think that’s for quitters. So some people go to option two.

Choose your poison. There are so many ways to pretend you’re not depressed. Alcohol will cover it up and the next day when you feel like shit you’re not depressed you’re just hungover. Hair of the dog will sort you out. If you don’t like booze there are so many drugs out there. Some will take high enough so you can’t feel the depression. Some will take you down so low that you won’t care. And if you don’t trust drugs there’s always food. Suffocate those damn feelings under handfuls of sweet, sweet food.

But over time the Substance Abuse box keeps getting bigger. It gets easier to tick. Eventually it gets it’s own denial sub heading so that you can deny that the substance abuse is a problem. And then comes the day when you realise that the words ‘Substance Abuse’ are written on a label. They’re covering something up. And when you scrape or peel the label off you find that underneath it is the word Suicide. Because substance abuse is just suicide the long way round.

That Suicide box is always tempting. It’s practically talking to you. Telling you that if you tick it right just once you’ll never have to worry about the damn test ever again. Some days that box is huge.

But if you care about the people around you that option is out of the question. So you move to the bottom of the test and you tick the Depression box. The hardest one. The one that means admitting there’s a problem. The one where you seek help and take pills and talk about your damn feeling. The one where you have to practice self care instead of pretending that you don’t exist. The one where you have to cut the toxic people out of your life. You’ll know the toxic people because they’re the ones telling you that you’re selfish or weak for ‘choosing’ to be depressed.

Diet Update 8

After a very active weekend during which I had a couple of days where I ate less than half my allotted calories I have lost a whole 400g (just under a pound). And I’m in agony. And feeling like shit.

But at least I survived a 3 days of my Mum insisting that I should have a biscuit because they’re only small. She did make sure to tell me that she’s super proud of me for losing weight. It’s nice of her to say so but it doesn’t change the fact that the weight loss is meaningless.

Tomorrow (as I write this it’ll be yesterday by the time it posts) I have an appointment at the leg ulcer clinic. I don’t have a leg ulcer. I assume this is my Doctor trying to get me compression wraps. I predict that I will yet again be sent home with nothing but we shall see.

[Edit: I was not sent away with nothing. I got an actually useful referral. Yay!]

Last update. Diet Page

I can deal with the pain it’s the frustration that really hurts.

So the CBD oil that I’ve been talking about in previous posts here and here is definitely working.

My background levels of pain have greatly reduced and it’s now easier to deal with breakthrough pain. However my right knee has clearly decided to be a horrible bitch about things. It’s swollen and it’s grinding and it won’t reliably bend and it hurts whenever I do foolish things like stand up or sit down or roll over in bed.

And something else has decided to flare up. Something really painful. Something that I really need to see a doctor about but I was too late this morning to get an appointment and I have stuff to do tomorrow that can’t be moved and if I leave it till Friday to see the doctor then I will have reached my own personal defcon 10 of pain.

That’s not 10 out of 10 on the pain scale. That level of pain is just screaming until it stops. Defcon 10 is out of my mind with pain, distraction and frustration. It’s a result of having to just put up with a level and type and location of pain that no-one should have to put up with. Defcon 10 is dangerous because it makes me want to knife 40 people at random. Hopefully the CBD oil will help with this kind of pain.

If anyone is interested I will post links to the kind of vape pen, cartridges and oil I’m using.

My problem with body positivity

I don’t have a problem with the Body Positivity movement as long as it’s your body we’re talking about. You look fabulous, by the way.

I just can’t be positive about my body because there’s nothing positive about it. My problem is not that I’m fat. Fat is not a problem. My problem is that my body is a worthless piece of toxic trash that has been torturing me almost from birth.

I hate my body. Everything I’ve achieved I have achieved in spite of it. All it does is slow me down. I can’t rely on it. It turns the food I eat into dysfunctional fat cells that lock the energy away. I can’t access that energy and the cells just build up on my legs looking fucking hideous, hurting and stopping my joints from working.

I’m trapped in this fucking cage. It doesn’t work. I can’t fix it. It’s made my life a living hell. There’s nothing I could ever have done to fix it. I’ve been struggling my whole life, blaming myself, thinking that I was a failure and the whole time it’s been beyond my control. I was doomed from the start.

If there was any justice in the world I’d be offered a do-over of some kind. But there isn’t so I’m just stuck here until this body stops working completely. I feel like my entire life has been wasted. Not just because this body sucks but because I’ve wasted so much time blaming myself for something that was outside my control and trying to fix something that was never going to work.

No more. Fuck this body. I’m done putting up with its bullshit.

Well I say that… but even as I type this it’s making a spirited attempt to get me to stop. My back is cramping up. The pain is all I can think about. My body is demanding that I stop typing and go back to bed or something. Realistically there isn’t much I can do about it.

Still not feeling it

Sadly I am still not feeling like writing anything constructive or useful. I had planned another commentary on a film or another post full of advice for young writers but I’m on strike.

I am on strike because the world continues to be unfairly messed up.

In the United States politics continues to be a shit show. The ongoing argument about the extent to which the Trump administration is corrupt, incompetent, or in the pocket of Moscow may distract people from the attempts to ninja a terrible new healthcare act through the Senate.

In the UK our Prime Minister risks restarting armed conflict in Northern Ireland in order to hold on to power. She’s trying to do a deal with the DUP – a party with longstanding links to loyalist terror groups; a bunch of climate change denying, creationist, homophobes who hate Catholics.  There are just a few massive problems with this.

  1. It risks breaching the Good Friday Agreement.
  2. It’s pissed of Sinn Fein so much that there are rumours the might take up their seats in the Westminster Parliament.
  3. The DUP will resist the hard Brexit demanded by much of the Conservative base because they don’t want to reinstate the border with the Republic of Ireland.
  4. So will Sinn Fein if they do take up their seats.
  5. The only genuinely popular Conservative politician in the UK, and leader of the Scottish Conservatives, is a Lesbian who’s engaged to an Irish Catholic woman.

The British media has spent most of the last five days telling us that a second Scottish independence referendum is dead because the SNP only won a clear majority of the votes, not the overwhelming landslide they won last time. Both the Scottish Conservatives and the Scottish Labour Party are claiming a victory. Even though both of them put together have just over half the seats of the SNP.

Every day the news is full of stuff that makes no sense. I have had enough.


My country wants me dead. Again.

At the last election I was faced with the realisation that the electorate of the United Kingdom either actively wants me dead or at least doesn’t care if I die. It was a sobering realisation.

This time it is, if anything, worse. Because now it’s not just the United Kingdom. Many of my fellow Scots want me dead. Why?

Seriously, Scottish Conservative voters, why do you want me and people like me dead? You’ve voted for a party that has cut disability benefits, attacked the NHS, cut Social Care spending and refused to condemn the forced institutionalisation of disabled people. People are dying. People have died. And if, as seems likely, the Tories cling on to power then more people will die.

If you voted Conservative in this election then you voted in favour of turfing out law abiding EU citizens, you voted in favour of the rape clause, you voted in favour of taking mobility cars from disabled people, cutting benefits to the mentally ill and to people with learning difficulties. You voted in favour of benefit sanctions that drive vulnerable people to food banks where they can hang out with nurses and police officers. You voted against the NHS. You voted in favour of fox hunting and selling ivory and cosying up to Donald Fucking Trump.

If you voted Conservative then why? What was it that you thought you were voting for?

Of course if it’s Scottish Conservative MPs that return the Conservative party to power against the will of the English electorate I am going to laugh for about a week. Particularly since the EVEL legislation, pushed through by the Conservatives in the wake of the independence referendum, means that they wont be able to vote on a lot of bills.