Not exactly blocked but…

I didn’t get a blog post out yesterday and I’ve barely done anything to my novel in progress since Thursday. I’m not quite sure what’s wrong.

The lack of blog posts feels like it stems from me no having any ideas for posts. But I do. I think of them all the time it’s just that when I sit down to write they seem wrong. I can’t even quite define why the feel wrong but that’s one of the problems with creative work. You’ve got nothing but your instincts and if you stop trusting those then you’ve got nothing. You might as well be making mud pies with your keyboard because you’ve given up on quality control.

With the novel it’s a plot problem. I’m deep into re-writes and I’m trying to fill a hole so I can’t use any of my usual forward momentum tricks. I can’t skip the scene cause that’s what got me into this mess in the first place. I can’t go and write some other scene because I need to know what’s going on with this scene to continue. I don’t know where the scene should be going and my attempt to wing it went nowhere.

This isn’t writer’s block exactly. It’s more like being lost in the mist. A block prevents movement. The mist renders that movement meaningless and potentially counterproductive. Do I stand still and wait for the mist to clear or do I pick a direction and strike out and hope to eventually reach the edge?


Things are not going my way

Gentle readers I beg your patience while I rant for a bit. The last few days have not gone well and the next few aren’t looking great either.

I’m having a major Fibromyalgia flare up. For the last three days I’ve had a muscle spasm in my back so bad that the pain has gone through excruciating and into exquisite. I’m taking Tramadol, Paracetamol and vaping CBD and I still can’t bend without screaming. There is no comfortable way for me to sit, stand or lie. Part of the spasm is over my left kidney and if I started pissing blood it would be a relief because a kidney infection can be treated, kidney stones pass, even kidney failure can be managed.

Fortunately that’s distracting me from the sudden appearance of a hole in one of my back teeth. I think a filling might have fallen out. Or maybe a bit of the tooth has cracked off. I already had a dental appointment this week so that’s lucky. I’m trying really hard to believe that it’s lucky but it’s hard to think straight over the screaming pain from my back.

I’m still not back on my usual eating plan because of difficulty getting the shopping sorted. Between trouble with deliveries and the problem with my back and my spouse’s anxiety being too bad to do the shopping for me I’m having difficulty sorting out a coherent meal plan.

I’m having trouble getting anything done. I started this weekend with a book I’m wanted to read, a film I wanted to watch on Netflix, a film I’m trying to see in the cinema before it leaves a podcast I’m trying to catch up with and a novel that I’m trying to finish writing. In all I managed 15 pages of the book, neither of the films, 3 episodes of the podcast and about 2,000 re-written words of my novel. That’s pathetic.

And the worst of it is this feeling that my life is slipping away from me. Time is passing and I’m not doing anything with it. Precious seconds of my life are ticking by and I am variously paralyzed by pain, or depression, or indecision, or just lack of basic organisational skills.

Today’s displacement activity is…

Notebooks, and journals, and organisers.

There’s something so hopeful about ordering a new planner or diary. Particularly if it comes with some sort of promise to sort out your life and help you to ‘get things done’. When the thing arrives there’s all that lovely busy work involved in filling in details and making plans and committing to goals. It all feels so very productive.

And none of it fucking works.

At least none of it works reliably for me personally. Your mileage may vary. Possibly you, dear reader, are not disorganised trash like me.

Putting all my appointments in a Google calendar that is synced to my phone calendar mostly works. It’s at least 90% successful as long as I remember to put the thing on the calendar and set an alarm for a couple of days before. But it only works for appointments.

As a person with ADHD, depression and fibromyalgia I need to be organised. I need to plan ahead. As a person with terrible executive function problems I am shitty at planning ahead. It’s not unusual for me to get up at the crack of 2pm and spend half an hour setting goals and making lists of the stuff I need to work on to achieve those goals and then immediately go and do something else instead.

I am so bad at following through that I could make a todo list that includes reading a book that I’m supposed to be reviewing, catching up with the Unbeatable Squirrel Girl comic and eating some chocolate and it would lead to me scrubbing the kitchen sink.

It’s starting to feel like I only ever achieve things by accident. I’m pretty sure that my 9+ first drafts and my one completed novel only exist because I was supposed to be tidying the house. I’m wrapped in a crochet shawl that only exists because I was supposed to be editing. I’m blogging because I just decided to crochet a hat. Earlier today I cleaned the hob rather than blog.

And it wouldn’t be so bad if I was doing any of these things properly. But i’m not. My books aren’t published, my blog is kind of bland, my kitchen is still a mess and my crochet mainly results in me spending too much money on yarn. But I recently backed a kickstarter for a really nice planner and this one has a SYSTEM. Surely this is the one that will finally work.


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Another Bloody Diet Post

I have gained 200g. That’s the same less than statistically insignificant 200g that I lost last week. This week I’m menstruating so it could easily be that.

I am thoroughly pissed off with this diet. It’s partly because I’m not happy with my attitude to food right now and partly because the “Beast from the East” is making it impossible to properly plan my shopping.

I’m disabled so I rely on food deliveries to get the bulk of my groceries. I get a few things locally but my condition is variable so I can’t rely on being able to get out to the shops. So I can get a bit intense when Sainsbury decide to cancel deliveries with no notice or warning. Not even an email to say “No food for you. Soz,” with a handy ‘reschedule for a day when the weather isn’t trying to kill us all’ link to click on.

My options now are to come off the diet and eat all the store cupboard stuff that doesn’t really fit it until I can get a delivery or to go on the ‘I can’t eat anything because Sainsbury is run by bastards’ diet. Or find out how many of the local takeaway delivery drivers are nuts enough to be driving in this weather.

Wish me luck.

It’s not the pain that’s the worst it’s the rage

Every day the first thing that I do is to fight with my compression tights. And also my self image and my failing body. I say it’s the first thing but really the first thing I do is to wake up and curse the fact that I am awake and alive and that my life is still like this. Then I muster my limited mental resources for the act of will necessary to get out of bed. Then I fight.

It makes me so fucking angry. Getting up every day to fight a losing battle against the Lipoedema that will eventually turn me into a blob in a wheelchair. Being faced with the reality that I’m not strong enough to get my fucking tights on properly. Knowing that if I can’t master compression garments I won’t even get on the waiting list for the surgery that is the only lasting treatment.

Spending the next hour with weak arms and shaking hands because I’m not getting any better at this. Unable to go anywhere because I can’t get the tights to stay up while I’m walking. Fighting the urge to stab myself. To hack at the useless, lumpy flesh that’s destroying my joints.

And then I spend the rest of the day surrounded by the evidence of the chores that I can’t do because I’m too exhausted from my battle.

I’m trying to get better. I diet even though I hate it and I know it won’t fix the lipoedema. I try to exercise even though that hurts and so far actually seems to be making things worse. I’ve been trying the 100 squat challenge. It took me 3 days to get up to 100 squats but I haven’t managed it since because my right knee hurts too much. The knee pain woke me up this morning.

And the absolute worst is the feeling that it’s all worthless. What’s the point of all this fighting? All it does it makes me angry and tired. I’m giving up the ability to get stuff done now for the chance to be able to do more in the future. But that’s just not going to happen. I don’t get that lucky. This fight is doomed to failure and by fighting I’m making everything worse right now.


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2018 Diet Update 3

This week I lost 1.3kg (just over 2 and a half pounds). My total weight loss is now 14.4 kg (31.6 pounds or 2 stone, 3.6 lbs). After experimenting with the positioning of my scales I can be fairly sure this is genuine weight loss but of course much of this week’s total will be down to fluid being forced out of my legs by my compression tights.

Wearing my compression tights continues to be a massive pain in the arse. And everywhere else. Just getting them on uses most of my spoons meaning that I don’t have much left over for chores or writing or working on the thing I’m crocheting for my daughter’s birthday. Or even for reading the book I’m reviewing.

More and more I’m questioning why I’m even on this fucking diet. Let us not forget that calorie restriction is not a treatment for lipoedema, that my value is not inversely proportional to my size, and that no level of weight loss is going to magically render me decorative enough to be societally acceptable. I only got on this damn treadmill because weight loss is a hoop that I have to jump through in order to access the treatments that actually do work.

I am trying to commit to more exercise. Not to lose weight but because I want to be stronger. I’m thinking of taking on a 100 squat 30 day challenge. The idea is to work up to 100 squats a day (any kind of squat counts) and then keep it up for 30 days. I have no idea if this is a good idea but I do think it’s important to have goals.

My problem with body positivity

Strictly speaking I have two problems with body positivity. One is definitely my problem. I think the other is a problem with the movement.

Let’s talk about my problem first. I’d rather own my problems before I go pointing out other people’s. My problem is that I find that I cannot love my body. At best we exist in a state of détente but most of the time we are at war. I hate how it looks. I hate that it’s never comfortable and that I am never comfortable in it. I hate the constant negotiations to get it to do anything. Most of all I hate how limited that anything is.

I want to be strong. I want to exercise. I want to go for long walks. But I can’t lift weights today because I put my compression tights on and apparently that’s me done for the day. As I write this my hands are still shaking just from the effort of getting dressed. How dare they.

And this, of course, creates a secondary problem. Because people keep telling me that I should love my body and I just can’t I feel like I’m letting the side down. Not only am I failing in my patriarchal duty to be decorative I’m failing in my feminist duty to love myself. I’ve failed to be thin and now I’m doing fat wrong.

Now let’s talk about my problem with the body positivity movement, and specifically the ‘healthy at any size’ part of the movement.

Because some of us are not healthy. Some of us are fat because we’re sick. Some of us are fat and sick with no causal link. And then there are people like me. People with lipoedema and similar disorders. People with dysfunctional fat cells that we can’t get rid of. We’re not sick because we’re fat, it’s the fat that’s sick.

I’ve written before about lipoedema. It affects up to 11% of women and post pubescent girls. It’s triggered by hormonal changes. It’s progressive. In many cases, and I am one of them, it is painful and debilitating. Our bodies lay down dysfunctional fat cells that don’t work as an energy store. These cells hang around in the wrong places, trapping fluid, putting pressure on our joints, and causing pain.

Before anyone slides into my comments to tell me that I just need to eat less and move around more my anorexic thirteen-year-old self would like to have a word with you. And she’s carrying a cricket bat. I’d run if I were you. No, faster than that. She’s spent the last 4 years running from people throwing rocks at her head so she’s a lot faster than me. No don’t stop for a rest she’s got plenty of stamina. Try to find some flowers. If she gets a lungful of pollen she might have to stop for an asthma attack.

But back to body positivity and my problem with it. I feel stuck. The lipoedema support groups are full of internalized fatphobia and people whining about how they should be immune from societal fatphobia without ever questioning that it should exist. The body positivity groups erase my experience of being disabled and fat. The insistence that fat women are hot just reinforces the patriarchal assumption that whatever else a woman is she must also be decorative. What if I don’t want to be decorative? What if I want to be a dapper androgynous badass?

Can’t I want to get rid of my dysfunctional fat while at the same time supporting your right to look however you want to look? Can’t we all agree that how people feel about how a person looks has nothing to do with their value as a human being? I just want to be in the world without the feeling that either I have to cut parts of myself off or excavate a me-shaped hole in order to fit in.

2018 Diet Update 2

This week I have either lost 2kg, gained 2 kg or stayed the same depending on exactly where I put the scales and how I stand on them. Clearly I’m going to have to pay much more attention to their exact position on the floor in order to get any idea of the actual trend.

I’m not happy with my eating this week but it was better than the last week. Hopefully next week will be better.

This week has been one long round of the period from hell, struggling with compression tights and attempting to schedule my days so that I get anything done. It’s been two steps forward and three steps back. I still can’t wear my compression tights out anywhere because I can’t get them on properly and that means they just slide down the moment I try to walk anywhere.

Putting the tights on is so exhausting that I’ve only managed one workout this week. I can’t exercise with them on, I have to prioritise wearing them and when I have to take them off I’ve got nothing left for lifting weights. I really hope I get better at this.

If I’m so clever why am I also such an idiot?

Once again I feel like human garbage. This happens often. Today it has happened because I can’t keep all our finances in my head.

That is how it’s done, right? You know how much money comes in. You know what all the bills are. You keep a running total. You pay the bills when you have money and you know how much you have left over. It’s not rocket science. My parents did it. My Mum still does it and she’s on the other side of 70.

But I just can’t make it work. I’ve never been able to keep it all straight in my head and it’s not because I can’t count. I’ve tried to externalise since the other way wasn’t working. I make notes in my diary. I have reminders on my phone calendar. I have a banking app that means that I can check how much money there is at any given moment and move it between the current account and the savings account.

It all seems very organised it but I keep running into the same problem. I want to buy something, or we need to buy something, or my spouse wants to buy something and I keep making the decision based on how much money we have right now. Not on how much money we’re going to have tomorrow, or next week, or on whatever mystery date the next bill needs to be paid.

Yes I do absolutely understand that I am poor and therefore I should never spend any money on anything that gives me joy. But there’s a limit on how many times you can say no in a day There’s also a limit on how long you can live with no joy.

Also I am weak and stupid. I must be stupid. Managing money is so easy. Everybody says so.

Adventures in medicinal hosiery

On Saturday my compression tights finally arrived so I can finally begin to manage my lipoedema. I read the instructions carefully but I didn’t put them on because I was already dressed and frankly, the instructions scared me.

On Sunday I tried them on. It was torture. The fabric is so rough and requires so much force to pull into position that I developed a blister on one knuckle and tore the skin red raw on all the others.

My arms were shaking. The tights weren’t pulled on properly. My legs were on fire and I was filled with an irrational rage caused by a combination of exertion and body dysmorphia. I felt useless and weak. I decided that maybe I was doing something wrong, even though I had read the instructions and done my best to follow them. I was only able to wear the tights for an hour and a half because I couldn’t get them back on after using the toilet.

I asked for advice in one of the Facebook support groups for lipoedema. It turns out you’re supposed to use gloves. There are even special donning gloves made for the job (though most of the members use either disposable latex gloves, rubber washing up gloves, or gardening gloves). How is it that I didn’t know that? If it’s well known that this kind of compression garment will tear your skin off and there are gloves made for the job why didn’t anyone tell me that?

Today I tried to put them on again with mixed success. I used some disposable vinyl gloves that we had in the house and I tried lying down to get them above the knees. As I result I’m typing this while wearing the tights (though they’re still not on properly) but I’m also wearing a lot of plasters because I tore the blister right off and added four new blisters and that was with the gloves on. I think I might have blisters coming up on two of my fingertips. I’ve ordered better gloves and finger tape.

You know how I often complain that my life is unreasonably difficult, that there are always more steps between me and where I want to be than there should be? This is that. This is just another example of the endless multiplication of obstacles between me and any goal.